The true story of an exceptional boy
By Sara McDermott
In the summer of 1957 my sister brought her baby home. I was 21 and the only one of my siblings still living at home. I was always busy with whatever 21 year-olds do, so at first he was just a bundle of fluff to me. He was always there in the crib and, when I paid attention at all, I just saw feet and fists waving from the blankets.
Time passed and eventually two of the little fists grabbed the rail and two big bright eyes followed me as I moved around the room. Time stands still for babies. His whole day amounted to eating, sleeping and watching me when he could. I was relieved when he started to crawl as I’m sure he was.
Now a baby just getting around, even if it’s just to get from one side of the room to the other, is endless entertainment. He tried to reach up to turn on the console TV and I laughed. He tried to stand up and fell on his face, and I laughed while he laughed with me, as if we had a private joke. I didn’t know it, and neither did he, but it was the beginning of a life-long friendship. We always laughed at the same things and, even as a grown man, I could put him in stitches with a dumb joke or a snarky remark about the passing parade. The thing I’ll always remember about Tom is his unfailing sense of humor. We were merciless in making fun of politicians. He once told me he was going to write on my tombstone “She didn’t vote for Reagan.”
In time assaulting the TV wasn’t enough. He looked like he wanted to go someplace so I bought a little car seat and drove him around town in my ’55 Olds. He was still little then, and probably the best traveled 3-year-old in town. He would take everything in with those big ‘ole eyes. They never missed a thing, and I never got tired of seeing them light up as he took in the world from the passenger seat.
As he grew and entered school Tom make friends easily. Tall and lanky with a trusting nature, he seemed content with his life. But Tom had a secret and when, years later, he came out as a gay man, I realized school must have been difficult for him. Characteristically he must have handled it himself.
I had moved to another town when he was ten, but it didn’t put a dent in our friendship. I came home often and, many times, took the kids out for treats or school doings. He had siblings by then, and I always noticed how he looked out for the little ones. His sense of responsibility was far beyond his years, a trait that stayed with him through life.
When Tom ventured out to get a job I was surprised to hear that things didn’t go well at first. He was fired from a couple of jobs and no-one seemed to be able to explain why. He was honest and smart and a good worker so I pondered this but never asked him about it.
Time passed and I got older, but Tom still looked young. He was working at a co-op and had found his life partner. The bought a house together and, since by now we all knew he was gay, life seemed to have settled in for him. Eventually he got a new job at an auto supply factory and was making enough money to afford a few luxuries.
It wasn’t until well into the new century that things began to fall apart. In December of 2016 the plant he worked for permanently laid off employees with upwards of 20 years of service. Tom had just passed the 18 year mark and was looking for a job at the age of 59. He called often to report how the job search was going. He went about it methodically, lining up openings and knocking down the interviews one-by-one.
On May 14th, Mother’s Day of 2017, Tom called in the afternoon to ask if I could come down on Monday the 15th to take him to a clinic appointment. He said he was feeling very bad and had such pain in his back that he couldn’t lay down. He had been seeing doctors about a cough and chest pain and had been told he had COPD. He wasn’t able to get the oxygen contraption to work right and was getting panicky. He related to me at the time that he had been asked to leave an ER the day before. He was told that there was nothing wrong with him and that he was just trying to scam them for pills.
I was incredulous. How could they do this to someone in such obvious pain? Since he had an appointment at the Pulmonary Clinic the next day he said to wait until morning and pick him up, as he didn’t feel he could drive.
The only way I can describe the next two weeks is nightmarish.
I picked him up the morning of May 15th. I was appalled to see that he had lost a significant amount of weight. He stood about 6 feet 3 inches tall and had lost 20 to 30 pounds. He had been told the reason for the weight loss was his constant coughing.
When we arrived at the hospital I said I would take him up in a wheel chair since he was clearly exhausted. He had cut off all his long hair and I remember thinking he looked like a little boy only, instead of pushing him in a wagon, I was pushing him through the halls of this huge hospital.
The clinic treated him very well. They took tests and arranged an opening at the spinal clinic to check out his back. They set appointments and gave him some exercises to do and explained the oxygen dispenser to him. I took him home and felt much better about his care. Additionally he had gotten an appointment on May 22nd for x-rays and an MRI to determine what was causing so much pain and discomfort.
I decided to cool my heels and wait. On Wednesday the 31st I called him and found out that the x-rays and scans had discovered stage 4 lung cancer.
Tom was calm. A biopsy was scheduled for Thursday, June 1st. On Thursday morning Bryan called and said Tom had gotten sick before they could do the biopsy and he wanted me to come down. I found him in the ER feeling better and waiting for a room to open up. It had been decided to do the biopsy Friday morning. At around 5 p.m. I went home when the room became available. It was the last time I saw him in a conscious state.
On Friday afternoon, after waiting most of the day, I received a call from Tom’s sister who told me Bryan had called and said we should come down as soon as we could get there. I was still unaware of how bad the situation had become. I thought we would be informed of what treatments were available and how to proceed. I wasn’t prepared for what I found. Tom had been found unresponsive on Friday after the biopsy. He was on oxygen and heavy meds to keep him comfortable. A nice young doctor from the hospital held up an x-ray and explained that the biopsy had shown the cancer had spread from his lung to his liver, spine and brain.
My shock was indescribable. I knew instantly there was no hope. This was Friday evening. For several hours Thursday I had sat with him in the ER waiting for a room. We had talked about everything and he was fairly upbeat except for the discomfort of lying on a gurney waiting for a room. He didn’t look comfortable now, just tired. The attending doctor told us there wasn’t much chance he would come out of the coma but we could talk to him to see if he could respond. Tammy tried to call to him while I just stood there and worried that he might hear her and realize he couldn’t answer.
The nurses were coming and going, checking the mysterious machines that were keeping him breathing. At about 3 a.m. we were told it was time to take the meds away to see if Tom could come awake on his own.
Just a few minutes later the doctor said that, with family permission, they would take the oxygen. I was numb. I saw the nurse un-hook the tube and tried to comprehend what was happening.
I looked at him and saw the little boy I had hauled around town so long ago, when anything could make him laugh and the future seemed secure and bright. He was alone now, off in a place I couldn’t follow.
He died then, his eyes opening for the last time, but the light was gone.
